Friday, February 20, 2009

GOOD NEWS!!!!!

Just got off the phone with the doctor. The spinal tap test came back negitive. The solid mass isn't cancers. He said that it could just be an over grown portion of her brain we may never know. We are for sure going to do another MRI at the end of March and keep an eye on it. There is still the chance of it moving or growing. Also the cyst can also move and grow so we need to watch that also. Again THANK YOU all for your Prayers.

Sunday, February 15, 2009

Valentines & Spinal Tap


For those of you who didn't see Destiny's Valentine Box from last year here is a picture, sorry it is sideways. The picture below is Destiny's Valentine Box for this year. Yes it is a three tier cake. On the top Kristie & Destiny cut a hole in the middle of the first two layers for the valentines. They started working on this a couple of weeks before it was due and they still needed to finish it the night before. Destiny won over all in her class at school for her box.


NOW Megan! Friday, February 13th we headed out at 7 am for her spinal tap at 9 am. We got there and the doctor and nurses were concerned that we might not be able to do the procedure since she was sick and her asthma is acting up. They checked her lungs and her left lung had some fluid in it but it was a just a little bit and they would watch it while she was asleep. Matt was able to go in the back with her while they put her to sleep. He said it was quick and wierd to see her eyes roll in the back of her head. The procedure only took 30min, they took 3 syringes full of spinal fluid. That was wierd to see for me. The reason they took so much so they can do multiple tests. After the doctor was done we had to stay for another 2 hours and have her lay flat on her back. They said since they took so much if she got up her brain would drop, since our brains float in the spinal fluid. It took some time for her to come back to herself. She still needed to lay down for 24 hours after we got home. Matt and I think that was the hardest thing to go through, we had to practically sit on her. The doctor said that we will have the results by Friday, February 20th. As soon as I get them I will post the results. Now I know you are wondering about the blood results so here it is they came back negitive. Meaning that according to them the tumor isn't active. So far it looks like the tumor is benign. The doctor says it looks like we will be doing another MRI in 6 weeks. To answer some of your questions. There was never a bump on the outside of her head, and we haven't had to shave her head yet Darrell. Matt and I would like to thank you for all of your prayers.

Monday, February 2, 2009

More Tests!!!! :(

I am so sorry that I haven't updated our blog. Since it has been a couple of months since the last post I will take some time and let you all know what has been going on. In December Megan saw a Neurologist. That was a joke and a waste of time. They just kept telling us that the cyst was nothing and normal and not to worry about it. I still had them send the CT scans to the Radiologist to see what he thought. From that it was suggested to get an MRI done to get a better picture of the cyst. Megan was able to get in on December 26th. That was an all day event. We had to wait to get the results from that until the first of the year since the Neurologist was out of town. We got the call saying that there was a cyst for sure but, also a solid mass. Now we need to find out what that mass is so I needed to schedule blood work to be done and an appt. with a Neuro Surgeon to get his oppion on the case. It took some time to get the orders faxed to the hospital for the blood work. We got that done on January 19th. I talked to our family doctor on Tuesday the 23rd and he said that it was negitive. Meaning from that test she doesnt have cancer. That brings us to today. We met with the Neuro Surgeon today. It is for sure that she has a tumor but, the questions is it benign or not. He order more blood work today and a urine sample. They took 6 tubes of blood. My poor baby! She was so brave. He also order a spinal tap. Now the reason for all of this is to rule out other types of cancers. The blood work will rule out certain cancers and if the counts are low the spinal tap will confirm cancer or not. Because the tumor is in the brain there is a good chance the blood isn't asborbing the cancer cells where as the spinal fluid will give us better results. After the results come back from both of these test then we will discuss what road we need to go down. I hope this makes sense. I will try to be on top of this more as we go through each step.

***The picture above was taken before the fall. Before church she was playing with my camera.***